Knouf Family

Haden’s Healing I guess he didn't like the suit? Holding my 6 mos baby and feeling him go limp and unresponsive with blue around his lips was the first time we realized something was wrong with our precious baby. The Nine years Haden has been on this earth has been met with some obstacles,  “He” as an individual and ‘We” as a family have had to overcome. The news “Your child has Epilepsy” was very hard to hear, especially when it was met by medication and side effects along with invasive testing. As a Mother and Father of eight additional children, you can imagine this news also took a toll on them as well. As a mother, I dove deep into studying Epilepsy, to know as much about it as possible. I also as a Home educator tried to teach Haden’s siblings as much as I could about this disease. Months turned into years and I was less nervous about Haden having Epilepsy, most of his seizures were absence seizure  (staring type of seizures). Some years later, We found out his l...

My Five Year Journey Finding time to create a post seems to be my struggle these days. I have wanted to sit down and create so many different post for my neglected blog but the business of life prevents me! Five years ago, I accepted a position at Hope Academy Charter as a Teacher. My children had been  home-schooled up to that point, and they were excited to come to work with Mom and get to be in a “real” school as they put it. As we drove up to this cute little campus with a bell tower, I said to the kids in the car, “One day, I am going to be the Principal of this place”. Lol  Well that mission was basically accomplished! (If you read this post you will get the long version) Fast forward five years later and what feels like 20 years of stress, I decided to make a career jump and go back to what I have always been meant to do. Being a Wife and Mom! How is that a career jump?  I am working from home as an Education Specialist for Summit Academy Charter .We be...

Knouf Family Christmas Newsletter November 22, 2017 God has been so good to our family! It has been a long time! Traditionally, I use to write a Christmas letter, however I have failed to do so for a few years now. Part of the reason has been the change of how social media seems to keep us all connected more than ever. Truthfully the main reason has been that I have been too busy to even take time to write such a letter. Rewind back to 2014, Jon and I were going through a time of soul searching with our finances. As many of you know,  we have always had a strong belief that staying home with the children was where I should be. Pami was getting older and having children that could now help with her care it was decided that I needed to help with the financial support of maintaining a family of our size. We began to seek the Lord for guidance in this decision, ironically while I began working with my parents at creating a cleaning business of our own, we would listen to Dav...

Knouf Family Christmas Letter 2017

Prayers for Haden  Two weeks from tomorrow October 23 at 8 AM Haden will have his surgery. We are praying for a miracle that when they go in to do the MRI prior to surgery they will no longer see the lesion in his brain.  We have been giving him supplements that are supposed to help heal the brain and fruits and vegetables pills to help his nutrition because his eating is extremely poor.  We have seen a major decrease in his seizure activity which is an answer to prayer. At this point they’re making sure he has enough blood on hand as well as plasma because the medication he takes does lower his platelets.  I will have information Monday about donating blood and plasma on his behalf if you are interested.  Basically, pray for a miracle but if this is the path God chooses, pray for wisdom for all his doctors and that he will not have any problems or complications from the first surgery.  Once the first surgery is over he will...

Update on Haden First of all I want to thank those who have been faithfully praying for our Son Haden. This is an update on what is going on with him. Many of you know that he has Epilepsy and Autism and has been hospitalized for a kind of seizure activity that can at times not be controlled by medication, they call this Status Epilepticus. They also know that there is a lesion on his brain that is rather deep in the left side which in January of this year they noticed on the MRI, there could be a possible nodule/tumor in the lesion. Through the test that he has had over the past months it has been determined that whatever may or may not be growing in that area is slow growing and not fast growing.   He is receiving care from CHOC (Children’s Hospital of Orange County) which happens to be a level 4 comprehensive care unit for pediatric epilepsy. Bottom line, it is supposed to be one of the best in the country. After the team of doctors reviewed all his records and test, they ...